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WHAT WORKS IN EDUCATION The George Lucas Educational Foundation

Doose Syndrome?

Doose Syndrome?

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I have a student in my class with Doose syndrome. It's a severe form of epilepsy. She's a Kindergartener and her mom swears she knows all her letters and can read, but the most I can get out of her is 18 letters. I've looked online for epilepsy teaching tips but can't find anything. Is it possible she knows all this and just won't show me? How can I motivate her to work and show me? She's also very stubborn and often seems to be somewhere else, her mom keeps saying it's an act. I don't know who to believe or what to do. Help!?


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Whitney Hoffman's picture
Whitney Hoffman
Producer LD Podcast, Digital Media Consultant, Author

Hi Renee!

Below please find a bunch of resources I found that may be of help to you.

After reading this material, I think you need to consider her as a child with the potential for learning disabilities just like any other kid. She may have dyslexia, or ADHD on top of the epilepsy, and may need additional phonic awareness, Wilson Reading, Linda Mood Bell, Orton Gillingham approaches for reading. Maybe using technology and programs on an ipad might help her demonstrate her knowledge... I don't think the epilepsy itself requires you to do anything unique or special, beyond knowing that she is more likely to also have learning disabilities and will need that sort of support. The first couple o f links and PDFs should be of most help :)

Let me know if you think you need additional resources, and I'll go looking for you!

https://www.epilepsyfoundation.org/livingwithepilepsy/parentsandcaregive...

http://www.epilepsy.com/info/family_kids_education

http://www.epilepsynorcal.org/docs/Learning_School.pdf

http://doosesyndrome.org/parents-place
http://doosesyndrome.org/living-with-mae/resources
http://epilepsyclassroom.com/includes/pdf/epilepsy_fact_sheet_for_teache...

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